Relatives of a Colorado boy are searching for answers after they say he developed a rare skin condition that is “turning him to stone.”
Jaiden Rogers was first diagnosed with so-called stiff-skin syndrome at age 7. Three years later, the disease covers so much of his body in rock-like lesions that he is on oxygen and unable to go to school.
Rogers’ mother, Natalie Rogers, said they are searching and hoping for a doctor or treatment that can help Jaiden get better. She said doctors are even using chemotherapy medications in an effort to slow the growth of the lesions.
“It started as small little patch and it spread all over,” Rogers told ABC News. “They’re trying to slow it down as much as it can, until we can find something.”
Stiff-skin syndrome is a rare genetic disorder that leads to lesions with increased fibrotic tissue that can cause the hard or “rock-like” appearance. The disease can progress over time and cause mobility issues, especially over lower body joints, according to the National Institutes of Health.
Rogers, of Alamosa, Colorado, said the effect on Jaiden goes beyond dealing with the lesions across his body.
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SOURCE: ABC News, Gillian Mohney